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Neurodevelopmental Pathway

Who are we?

We are the St Helens Neurodevelopmental Pathway Team (Pathway Team) and we work for children and young people with complex neurodevelopmental difficulties, who require a multi-agency assessment to gain a better understanding of their needs. This process can lead to a diagnosis of autism spectrum disorder, attention deficit, hyperactivity disorder, global developmental delay, difficulties with attachment.

Who is the service for?

Our service is for children and young people up to the age of 18 years old who have a GP registered in the St Helens locality and require a multi-agency neurodevelopmental pathway assessment.

How to access our service?

We accept referrals from all professionals who work with children and young people including: GPs, Paediatricians, Speech and Language Therapists, Schools ect..

We ask that all referrals be completed on our team referral from and completed in conjunction with the child, young person or parent. The reason for this is to ensure we have all the relevant information  we require to organise an assessment for the child, and have valid consent to refer on and share information with a variety of agencies such as : Northwest Boroughs NHS Trust, Bridgewater NHS Trust, St Helens Council and St Helens Clinical Commissioning Group.

Once we receive your referral we will list the child for discussion at our weekly multiagency triage meeting; following this we will be in touch as soon as possible to share conclusions and next steps with you.

If you know a child or young person who would benefit from a multi-agency pathway assessment please make an appointment with your school SENCO, GP or other professional who can discuss this with you. Alternatively you can contact the team on the number provided and we will discuss the best option to refer your child.

What will happen if my referral is accepted?

The pathway team will communicate with you all through the process to explain what assessments your child will require, they can range from: Speech and language Therapy, Community Paediatrics, Consultant Psychiatry, Educational Psychology, ADOS (Autism diagnostic observation schedule), School or home assessment etc.

The journey for each child and young person is different and will depend on their individual needs, but please be assured all referrals to the agencies required will be completed by the Pathway Team. You will then receive appointments directly from the agencies who are required to assess your child.

We aim to support young people, parents and carers as much as possible throughout their assessment process and are happy to offer support, advice and to refer on to other agencies who provide intervention for your child such as CAMHS or Barnardos if this is required.

 

 

The Neurodevelopmental Coordination Service will co-ordinate a range of multi-agency assessments of your child in order to determine if there is enough evidence to make a diagnosis of eg. Autism Spectrum Disorder, Attention Deficit and Hyperactivity Disorder, Global Developmental Delay, Attachment Disorder, Social Communication Disorder etc. We aim to keep you informed throughout the process. 

Pre-school children (Up to Reception year of school)

Referral are accepted via the Bridge Centre, which provides initial support for family and assessment of children's development. 

School age children/ young people (Reception and up)

Referrals are accepted via your child's educational setting. A pre-referral process has been created to gather information and provide strategies in school and at home.

Either your class teacher or Special Educational Needs Co-ordinator (SENCO) will be provide you with a pre-referral information pack to complete and return.  

If you find difficulties in approaching your child's educational setting, St Helens IASS can be contacted for assistance.

 

A child's home address must be in St Helens to be assessed via the St Helens Neurodevelopmental pathway. Please see below links/ telephone numbers for our neighbouring assessment teams.

Please be aware that other authorities may use a different criteria for acceptance. Please do not hesitate to contact us should you be unsure.

On receipt of the referral, a multi-disciplinary triage panel will meet and consider the referral. This will then either be accepted or rejected. A rejected referral will be returned to the referrer with information regarding the reason for rejection and possible signposting to other services. If a referral is accepted a range of referrals to other services will be made to ensure a full assessment of your child.

Once all of the assessments have been completed and reports received, your child will be discussed at the next available Pathway multi-agency panel meeting. The specialist professionals in attendance will decide whether your child meets diagnostic criteria for a range of conditions including Autism Spectrum Disorder (ASD), General Developmental Delay, Attention Deficit and Hyperactivity Disorder, Attachment Disorder etc. Sometimes they may decide further information is required and we will write to you with the details of any further actions.

Once final outcomes have been decided, a face-to-face feedback appointment with the Pathway Clinical Lead and a Pathway colleague will be arranged. A final report will also be sent to you.. 

Assessments will involve two or more services from the following: 

If a diagnosis of autism spectrum disorder is confirmed, with your consent and according to your child's age, we will  refer you for the most appropriate parent support course.

If your child has received a private or out of authority diagnosis, please contact us as confirmation of diagnosis is required in order to access this specific support.

Shortly after receiving your child’s diagnosis of Autism Spectrum Disorder, and if you are in agreement, you will be invited to a National Autistic Society - ASD One Day Awareness Seminar.

It is a free one day course available to two family members. If there are available places an invited professional/advocate can attend with you. The course provides an overview of autism, provides you with the opportunity to meet others and seek advice from the course leaders.

There are several other programmes, designed help parents/carers understand their child's autism and support them by training and awareness.

The programmes include:

  • Earlybird Plus
  • Cygnet Parenting Support Programme
  • Sunshine Group for Parents and Carers
  • Healthy Minds Programme for Parents and Carers

Get more information about courses, training and support.

For Post Diagnosis programmes ring 01744 673135 or email: SchoolAgeTeam@sthelens.gov.uk

 

Training is available from St.Helens Council, Bridgewater Community Healthcare NHS Foundation Trust, NHS St Helens CCG, North West Boroughs Healthcare NHS Foundation Trust, ADDvanced Solutions and a range of online providers. This booklet will give parents and professionals some insight into what is available

North West Boroughs Healthcare NHS Foundation Trust will now deliver and manage

The St Helens Autism Spectrum Disorder Pathway

New Base and Contact Details:

Address: 

North West Boroughs Healthcare NHS Foundation Trust
ASD Pathway
The O'Hanlon Centre
Marshalls Cross Road
St Helens
WA9 3DE

Telephone: 01744 646517

Email: 5bp-tr.sthelensneuropathway@nhs.net

Lynsey Boggan - Clinical Lead Neurodevelopmental Pathway (St Helens)
Office Manager - Currently under recruitment
Dianne Cunliffe - Clerical Assistant